The procedure went well, but the results were very disappointing. We have another hurdle to jump over and we will. The physicians will need to put in a pump with medication in it into Philip. He will need to have it done as an inpatient, he will be in Intensive Care for about a day and then onto a regular floor for about a day. It is not yet clear if we will be able to go home after that or if we will need to stay in Chapel Hill for a time. They are not yet sure if I will be trained on the care of the pump of if they will send a nurse to the house each day. I should have asked more questions when the doctor was explaining all this to us but I didn’t. I was so busy absorbing the information that I failed to get all the information we need. It is not clear to me where in the body they are putting the pump. Is it the heart or somewhere near? How soon will they be able to reevaluate? What are the possible complications? They already told us there is not an alternative. One wonderful part of UNC is that I have all kinds of phone numbers that I can call tomorrow and get the answers I need.
Philip was very sure the results were going to be positive and he would be moving onto the transplant list. He is very disappointed and that really breaks my heart as a mother. It is only a bit of a delay, yet I feel terrible that he has to go through all of this. As the hours progress he gets a more optimistic and just mentioned that we are half way there.
We really appreciate all of your good thoughts and prayers.
Ha Shem has not brought Phil to this point to let him down. I know how disappointed Phil must be, but he must keep taking those baby steps forward as there is NO turning back at this point. He must have his new liver and we must all keep praying and embracing you all in our hearts and in our souls. You are all loved very much. I’m sorry that I can’t be with you but want you to know that you are in my thoughts every moment of the day. With all my love,
Lorrie
hi ran — i sooooooooooooooooo want to talk to you, but i’m afraid it’s too late to call you. if you see this tonight and feel like talking, please call – it doesn’t matter what time. if not, we’ll talk tomorrow. here i am telling you i want to talk to you and my phone rings — and it’s you!!!! does the fact that we were just disconnected mean that we were talking too long and the charge on your battery ran out? i tried calling you back and it just rang – no voice mail.
i am glad we had the chance to talk tonight. try to get some sleep tonight and start over again tomorrow.
i so wish i could be there with you and phil!! but since i can’t i’m sending hugs, kissses and lots of love!
i love you my dear friends — robbin
Sometimes it is hard to understand G-d’s plan, actually, most times it is impossible. Phil you are an inspiration to me, especially when I’m feeling down. This will all turn out in a good way, we’re just waiting for the word.
Philip;
We read your updates daily and are always thinking of you.You are constantly in our prayers. Hugs for you and your family.
The Glicks