We are home, the swelling remains and the oozing of fluid from his leg continues.
They did an ultrasound of both legs to confirm that he does not have a blood clot. They took a chest x-ray to determine that he is not retaining fluids in the chest, lungs and heart, which he is not. There is concern on my part because the x-ray did show that there has not been a change in the size of the heart since the last x-ray in August. That concerns me because we need for the pulmonary hypertension to improve before he can be put on the liver transplant list. The doctors in Chapel Hill have all of the information and will advise me if we need to do anything.
My heart breaks when I think of the number of hours this young man has spent on the lousy sheets they have in the ERs. The fact is, they aren’t big enough to be tucked in, and don’t stay in place. It is always uncomfortable because you end up with half of your body on the plastic. He is a real trooper. He doesn’t complain. He lets them do what they have to do no matter the pain or discomfort. He is always cooperative and compliant plus kind to each and every person that walks in to poke and probe him. He keeps his humor active and really does the best he can in the situation.
Randy,Shelly and Phil,
I admire you for your strength and for going public. Randy you have done an amazing job with your blog and I am proud of you – I know that this is what you wanted to do for a very long time. Making your journey personal will touch everyone even more and realize so much more what your family is going through on a daily basis. I am keeping you all in my prayers. Lorrie – thanks for helping Randy going live.
Sandra
Dear Sandra, thank you so much for your support. It is our hope that sharing our journey will be helpful to others. Philip is really enjoying watching as this blog evolves.
Randy Sperling
Grande alberino! Ringraziamenti per richiedere tempo scrivere qualcosa che sia realmente degno lettura. Trovo troppo spesso l’Info inutile e non qualcosa che sia realmente relativo. Ringraziamenti per i vostri duri lavori.
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